Well I owe everyone an apology as I haven’t been home to update nor had the computer at the hospital to update but I will do it now…better late than never as they say right
!
Now if only I remember where I left off. First night after surgery (Monday night) he slept great! Was still pretty much knocked out but did good. Tuesday it was a hard day. He was sore constantly and couldn’t move. He was 100% afraid of his G-button and would let NO ONE see it or talk about it. He did eat Popsicle but that was about it! He did get up a a few minutes but that didn’t last long and he was VERY slow moving! He continued on his pain medicine. That night was horrible. Not only was his still on IV fluids they started his first night feed to see how he tolerated it. They ran it a full 8 hours or so. He woke up 3 times to use the bathroom which was an ordeal to get him and all the pumps and wires into the restroom. He was in so much pain after that he didn’t sleep until 5am with them of course to come in at 7am wanting to start everything. Needless to say that was a tough night! That day wasn’t much different than the previous day. Didn’t get out of bed much nor want to move and still in denial and mad about the G button and how much it hurt, but his main complaint was the Fundo and the lack of swallowing ability. Things feel like they are getting stuck so that’s bothering him as well as him getting air bubbles he has a hard time releasing.


But he did give us smiles even at his worst times. He hated if we made him laugh because it hurt, but somethings were just to easy to not say!
LOL Sorry bubby!




Here’s how he’s hooked up for the feeds. 2 cans of the formula are placed in the bag…

That runs down through the pump, which is set to drop 55ml per hour…a total of just over 8 hours right now to get rid of it all.

It then runs down the tube…

where it is locked into the G button.


Wednesday we did finally get him to get up more but was moving VERY slow and still connected to IV’s and so forth. He had another rough night like the previous one but we got him over his fear of the G button itself and he actually gave himself some meds through it as well as clean it and move it around. He’s still VERY unsure of it but has been glad to show a few people how it works.






Since he was still sore and our vest hits his G button they brought in a kind they had there…it worked great, but now we have to figure out if we can get one because he liked it better! UGH!


Also when he cleaned out the book fair I figured out why my child is so smart! He could have gotten anything and instead he gets the Children’s Encyclopedia and YES we had to read it, we’ve made it half way through so far and the book about how baseball started and the icons of baseball.
I actually was thrilled he wants to learn so much!


Thursday was a great day!!! Although he was lacking on sleep they unhooked his IV and he was roaming the halls, wandered down and spent all of Pop’s money at the book fair going on and even made 2 trips to the cafeteria as well as a nice LONG stroll around the prayer gardens. It was such a beautiful day! He never got back in bed at all that day till it was time to hook him up for his last meds and begin his 3rd feeding.






After playing outside for a while we headed back in and he and Ms. Ashley took a picture…she’s an Aggie so the others put up their hook’ems but Payton told her she had to turn her thumb upside down…she wouldn’t do it but he tried! LOL

He also enjoyed listening to himself! HA HA

He’s tolerating the feedings great. He’s not eating much still but were slowly trying to get him to eat. The stipulation for going home at this point was a good night! And guess what…Thursday night was JACK POT! We had a great night!!!!! We didn’t get up to use the restroom at all and we slept through all the meds in the middle of the night! WHOOOOO.
Bright and early Friday morning (well okay 9am) they came in and we chatted and guess who got to go home!!!!!
Before we could start the going home process he said he needed to go visit Mrs. Phyllis, one of his teachers. He had made a thank you note for her son that sent him the NASA stuff. She was so excited to get it and also her daughter had sent her more stuff via email so they were checking it all out!


They have a wall that all the kids made people for and here was Payton’s hanging on the wall…so cute!

And Payton and Mrs. Phyllis

He got the mid-line out and it went amazing! They had this stuff (why they never used it before you got me) that was an oil and it came right off with little issues! They also found him the H1N1 vaccine before we left so at least he’s got it now and we will continue to hunt for ours!




My TOUGH TOUGH boy…two band aids…1 shot and one pull out of the mid-line and NO TEARS! I was/am so proud!!!!!! And he still has that adorable smile on his face!




So… Friday at

we got in the car…

And we headed home! It was great!! Only bummer about it was Savanna was up all Thursday night throwing up and so she’s now sick still, again whatever you want to say so he didn’t come home to a huge hug from her, but he did go straight for the remote and turned in on the NASA channel immediately to make sure he didn’t miss anything! LOL Things are looking like they are coming to normal! HA HA HA It took about 6 wagon trips to get all his stuff out of his room and filled up both cars. Of course that included his new IV pole and his new pump and all the new equipment we now have. He was so excited to be going home!!!!



Thank you with all our hearts for all your support, prayers, thoughts, well wishes and so forth. That was a L O N G 18 days in the hospital and it would not have been near as tolerable without all the family and friend support we have. Tonight, well I’m a bit nervous as we have to figure out how to run his feeds and all that stuff by ourselves, but I will update how we did as new G button owners in the days coming up!
AGAIN…THANK YOU and we send our love to all!!!!
PS. Think I have some work to do unpacking (this is JUST the stack from the hospital and not even all of it – half ended up in the kitchen!)


That will just have to wait…I’ll wish upon a star tonight for it to magically get clean!
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